Those of you who attend our PDSGs, may remember at Luke’s last presentation he mentioned a research project that he was hoping to get ethical approval for, and that it would depend on getting enough participants from our Post-Diagnostic Support Group.
I remain confident that despite the current situation, because all of this is online, that Luke will be able to get sufficient participants to conduct this most essential, vital piece of research that will place autistic individuals at the heart of the study.The number of people able to take part in this exciting research is limited, so please register your interest as soon as possible!
Consultant Clinical Psychologist
& Director of Axia ASD Ltd.
Invitation to a Discussion on ‘What it means to be Autistic’
- Are you an autistic adult?
- Would you like your voice to be heard?
- Would you like to participate in a study that will listen to your views on what it means to you to be autistic?
If so – read on!
Harriet Cameron from The University of Sheffield and Luke Beardon from Sheffield Hallam University are listening to autistic adults express and discuss their views on what it means to be autistic. You are invited to be a part of either a group (of approximately five, and no more than 10) autistic adults discussing what it means to be autistic; or, should you prefer to engage with the research without being part of a group, to have a discussion with Luke Beardon instead. If you choose the latter you will have the option of chatting with Luke on the phone, or via visual link (e.g. Skype) or via email or a messaging service. If you wish, you can be part of a focus group, and an additional interview. We will be offering a £20 voucher for each hour of your participation (up to a defined amount). There will be further opportunity after the focus group and interview to take part in analysis, and dissemination of the research.
What we hope to identify is what being autistic actually means to autistic adults. We are interested in the experiences autistic adults connect to being autistic, and in how autistic adults talk about being autistic. Once we have written the project up we hope it will help other professionals to have a better understanding of what being autistic means to the autistic community.
The project has been approved via The University of Sheffield’s School of Education ethics panel.
If you are interested in the role of co-researcher then please email one of us (email contact below).
We will then send you more detail on the project, which you should read through carefully before deciding to take part. If you did still want to take part after reading all of the information, we would ask you to sign a consent form.
Any questions, please email us. Many thanks in advance!
Our contact emails are:
H.Cameron@sheffield.ac.uk
l.beardon@shu.ac.uk
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