Axia ASD Ltd provide the recommendations in this list for information purposes only and the views, thoughts and opinions expressed belong solely to the author / creator of the work(s). Axia ASD Ltd does not endorse, nor accept any responsibility for views, beliefs and ideas expressed in these works.
The selection of resources is given as suggestions for possible useful reading and or viewing from a wide range of material available. Axia does not state that the contents of this list is exhaustive; it is a summary of some resources available which may be of use to individuals and families.
- ABC chart
- Ambitious about Autism know your normal toolkit
- Anxiety in Autism Guide
- Autism and toileting
- Eating problems
- Essential Guide Autism Sleep Summary
- Functional Analysis Questionnaire
- GMAC Reasonable Adjustment Guides 2018
- How can I help myself if I am feeling suicidal?
- How To Start A Conversation With Someone You Are Concerned About
- Late diagnosis
- Need Help?
- Neurodiversity Employment Survey Adjustments Interim Report v1.0.7
- Parents on the Autism Spectrum
- Sensory Processing Resources
- Sexuality & Gender
Asperger Syndrome and Alcohol
by Matthew Tinsley and Sarah Hendrickx
Drinking, Drug Use, and Addiction in the Autism Community
by Elizabeth Kunreuther and Ann Palmer
Freaks, Geeks and Asperger Syndrome: A User Guide to Adolescence
by Luke Jackson
The Awesome Autistic Go-To Guide: A Practical Handbook for Autistic Teens and Tweens
by Yenn Purkis and Tanya Masterman
When Young People with Intellectual Disabilities and Autism Hit Puberty
(Freddy Jackson and Sarah Brown)
For many people on the autism spectrum, anxiety is a real difficulty. The National Autistic Society has some very useful information: here is the link:-
Coping with uncertainty:-
Information about the Brain in Hand app:-
The app called Action for Asperger’s Grounding contains reminders for breathing and ideas for distraction techniques. (They call these “grounding”).
There are lots of other apps too: the NHS has a list of apps:-
There are lots of videos of breathing exercises on YouTube. Here are a couple:-
Sarah Hendrickx YouTube Autism and Anxiety – explains why autistic people are right to be anxious, why they are anxious and suggest ideas about what we can do about it.
Exploring Feelings: Anxiety: Cognitive Behaviour Therapy to Manage Anxiety
by Tony Attwood
Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing
by Luke Beardon (pre-order)
Lorraine MacAlister is an autism training consultant for The National Autistic Society. She has delivered training for both parents and professionals on a variety of issues related to autism, including toileting difficulties. She has also recently had an article published in The Nursing Times on toileting problems in children with autism.
These are aimed at neurotypical children but may be a helpful start: –
The Whole-Brain Child:
12 Proven Strategies to Nurture Your Child’s Developing Mind
by Dr Tina Payne Bryson and Dr Daniel Siegel.
The Whole-Brain Child Workbook:
Practical Exercises, Worksheets and Activities to Nurture Developing Minds: Practical Exercises, Worksheets and Activities to Nurture Developing Minds by Daniel J Siegel and Tina Payne Bryson.
Guide for parents –
Guide for young people –
Autism Anti-bullying video 2019 –
Toilet Training and the Autism Spectrum (ASD): A Guide for Professionals
by Eve Fleming and Lorraine MacAlister
Liam Goes Poo in the Toilet:
A Story about Trouble with Toilet Training (Liam Books)
National Autistic society – https://www.autism.org.uk/about/health/mental-health.aspx
The Autism Spectrum and Depression
by Nick Dubin
Exploring Depression, and Beating the Blues:
A CBT Self-Help Guide to Understanding and Coping with Depression in Asperger’s
by Michelle Garnett and Tony Attwood
Florence Neville – autistic nutritionist and blogger.
Books about eating difficulties
Just Take A Bite: Easy, Effective Answers to Food Aversions and Eating Challenges
by Lori Ernsperger and Temple Grandin | 1 Jan 2004
Food Chaining: The Proven 6-Step Plan to Stop Picky Eating, Solve Feeding Problems, and Expand Your Child’s Diet
by Cheri Fraker , Dr. Mark Fishbein Dr., et al. | 2 Nov 2007
Helping Your Child with Extreme Picky Eating:
A Step-by-Step Guide for Overcoming Selective Eating, Food Aversion, and Feeding Disorders
by Katja Rowell | 28 May 2015
Child of Mine: Feeding with Love and Good Sense
by Ellyn Satter | 25 May 2001
Ellyn Satter Institute
My Munch Bug
Facebook pages and groups
Cheerios Milk and spoon
Mealtime Hostage (page)
Sensory based Feeding and eating difficulties
My Munch Bug
Managing Asperger Syndrome at College and University
“A resource for students, tutors and support services”
by Juliet Jamieson and Claire Jamieson
The section on Education on the National Autistic Society website:-
Here is the National Autistic Society information on employment
They also offer a free online training module on finding employment:-
The Princes Trust:-
Finding Work interactive ebook
A digital workbook to help autistic adults with job searching and work preparation
(The National Autistic Society)
Asperger Syndrome and Employment:
What People with Asperger Syndrome Really Really Want
by Sarah Hendrickx
This document is a summary of our essential guide on sleep problems in people on the autism spectrum.
It is not intended to provide advice or recommendations on what you should or should not do about those sleep problems. But we hope it may help you think through some of the issues so that you can decide what you want to do.
Don’t make a decision today. Remind yourself that:-
You don’t need to act on your thoughts right now.
Try to focus on just getting through today, taking each day at a time and not the rest of your life.
You may have had suicidal thoughts before but you feel less able to cope today. You might find that you are more able to cope in a few days.
Talk to other people
It could be helpful for you to talk to someone about how you’re feeling. You could speak to friends and family that you trust. You could talk with your GP.
They may be able to offer you support and help keep you safe.
If you don’t want to talk to people you know, you could call an emotional support line or use an online support group.
There is no right or wrong way to start a conversation about suicidal feelings. However, although it can be really hard to start to tell another person how you are feeling, it can be really helpful.
Go to a safe place
Go to a place where you feel safe. Below is a list of places you could try.
- Your bedroom
- Mental health or spiritual centre
- Friend’s house
Stay away from things you could use to harm yourself, such as razor blades or pills. If you have a lot of medication you can ask someone to keep it for you until you are back in control of your feelings.
Stay away from illegal drugs and alcohol
Alcohol affects the parts of your brain that controls judgement, concentration, behaviour and emotions. Drinking alcohol might make you more likely to act on suicidal thoughts.
Drugs affect the way you think and feel. Different drugs have different effects. You may be more likely to take your own life if you take illegal drugs
If you focus on your suicidal thoughts it might make them feel stronger and harder to cope with. Try doing things that distract you instead. Below are some things you could do as a distraction.
- Play a computer game
- Do a puzzle or a jigsaw
- Read a book or magazine
- Watch a film or TV that you enjoy.
- Draw or paint
- Listen to music, if you enjoy music
- Exercise, such as going for a walk
Be aware of your triggers
Triggers are things which might make you feel worse. Triggers are different for different people. You may find that certain music, photos or films make you feel worse. Try to stay away from these.
Look at your crisis plan
if you have one, follow your crisis plan. You may have made a crisis plan with the help of a health professional or made your own.
Not everyone who is contemplating suicide lets their friends or family know how they are feeling.
Signs to look out for can include:
- Complaining of feeling hopeless
- Talking about feeling trapped
- Misusing drugs or alcohol more than usual
- Making a will.
This is not a definitive list. And sometimes people might show these signs for other reasons
There’s no easy way to ask someone if they intend to kill themselves. But it won’t make it more likely.
The best approach is to be sensitive and gentle. And it is also important to ask clear and direct questions as:
- Are you thinking about hurting yourself?
- Are you thinking about dying?
- Are you thinking about suicide?
Try to avoid questions such as:
- You’re not thinking of doing anything silly, are you?
Try to give them the opportunity to talk honestly and openly. This is helped by asking open-ended questions such as “Where did that happen?” and “How did that feel?
Try to avoid statements such as “I know how you feel” and “Try not to worry about it”.
Getting professional help
Although talking to someone about their feelings is can be very useful in helping them feel safe and secure at the time, these feelings might not last. Some people may need long-term support to help them overcome their suicidal thoughts.
This will most likely be easier with professional help, for example, through sharing concerns with a GP. Not only can a professional deal with the underlying issues behind someone’s suicidal thoughts, they can also offer advice and support for you.
If there is an immediate danger, make sure they are not left on their own.
Very Late Diagnosis of Asperger Syndrome (Autism Spectrum Disorder):
How Seeking a Diagnosis in Adulthood Can Change Your Life
by Philip Wylie
Nine degrees of Autism
by Luke Beardon
An Adult with an Autism Diagnosis:
A Guide for the Newly Diagnosed
by Gillian Drew.
Barney Angliss’ perspective on a late diagnosis –
How Carrie’s late diagnosis of Autism allowed her to see life through a new perspective –
Tom Cutler describes his experience of receiving a late diagnosis of autism –
The effect of a late diagnosis on relationships –
Writer, Joanne Limburg, describes her experience of receiving a late diagnosis of autism –
What to do in an Emergency
• In the event of an emergency situation or if you or someone else is in immediate risk of serious harm or injury contact the Emergency Services by dialling 999 and stating which service you require.
• Accident & Emergency (A&E) departments – also known as emergency department or casualty – are open 24 hours a day every day of the year. Not all hospitals have an A&E department: you can use the NHS Choices Website to find out to see if there is one near you. If you go to A&E, you’ll need to register first. You’ll be asked a few questions such as name and address but also why you are visiting A&E. If you need special assistance then you should let staff know right away: show them your Autism Alert card if you have one. The hospital may be able to call a Learning Disabilities Liaison, a member of their liaison psychiatry team, or provide any other assistance you or your carer may need. Once you’ve registered, you’ll be asked to wait until you are called for your assessment. A&E departments can be busy places at times: they can be noisy, bright, smelly and crowded sometimes. Because you might be waiting for some time, you might want to take something to help manage any sensory issues and cope with sort of environment.
• If you are suicidal and want to talk in confidence
• The Samaritans can be contacted on (0114) 2767277 or 116 123, or you can email firstname.lastname@example.org.
• PAPYRUS HOPEline is a charity for the prevention of young suicide. Their helpline telephone number is 0800 068 4141 and is open from 10am to 10pm on weekdays and 2pm to 10pm at weekends
• The Campaign Against Living Miserably (CALM) is a charity dedicated to preventing male suicide. Online webchat is available via www.thecalmzone.net. Their telephone helpline (0800 58 58 58) is open 5pm–midnight, 365 days a year.
• The Hub of Hope (https://hubofhope.co.uk) can be downloaded as an app, as well as having a website. It can help you find services that are nearby
If you need help and it is not an emergency, within working hours (Monday To Friday, 9am to 5pm)
Are you currently under the care of a mental health team?
IF YES – contact the mental health professional assigned to your care. If they are not available, ask to speak to the duty worker or team. Note: depending upon the service you are receiving, help may be available at other times. If this is the case, the service will provide you with details.
IF NO – contact your GP practice. If you do not know the number for your GP practice, you can find this in the telephone directory, or by phoning NHS 111.
Outside Working Hours (Evenings and Weekends)
Support and advice is also available via your GP: you will usually be directed to an out-of-hours service. The out-of-hours period is from 6.30pm to 8am on weekdays and all day at weekends and on bank holidays.
NHS 111 can offer advice and is available 24 hours a day, 365 days a year. You can phone them on 111. NHS 111 will ask for some basic information, including details of any medication you may be taking. If you’re calling on behalf of someone else, you’ll need to provide this information on their behalf. They will assess the problem and advise on the best course of action which may be to see a health professional, such as your GP. If the problem is very serious, they can help access the ambulance service
Alternatively, you can visit an NHS walk-in centre (WIC). Many centres are open 365 days a year and outside office hours
https://www.nhs.uk/livewell/mentalhealth/pages/helplines.aspx has a directory of mental health helplines
Heasman, B., Livesey, A., Walker, A., Pellicano, E., & Remington, A. (2020). DARE report on adjustments. Centre for Research in Autism and Education, Institute of Education, UCL, London, UK. https://dareuk.org/dare-adjustments-toolkit
Autism and Parenting
by Renata Jurkevythz, Maura Campbell and Lisa Morgan
The Out-of-Sync Child
by Carol Stock Kranowitz
Sensory Processing 101
by Dayna Abraham, Claire Heffron, et al.
Living Sensationally: Understanding Your Senses
by Winnie Dunn
Websites For Parents:
Lemon and Lime adventures –
The inspired treehouse –
OT Toolbox –
Therapy Funzone –
Pathways – child development information
Youtube links and videos:
Brain Highways – The Proprioceptive system
Brain Highways – The Vestibular System
Pathways.org – How Occupational Therapy Helps with Sensory Integration Issues
Pathways.org – Importance of Sensory Integration
Sensory Processing Disorder: Occupational Therapy Demonstration
Facebook pages and groups:
Sensory at home
Sensory Integration Matters
Sensory Processing Disorder (SPD) support
National Autistic Society
For younger children, here is something on CBeebies:-
My Family is Different:
A workbook for children with a brother or sister on the autism spectrum
by Carolyn Brock
Managing sleep problems – University of Leicester video in English (also in Urdu, Hindi, Punjabi and Bengali).
Sarah Hendrickx website
Dr Wenn Lawson –
Alis Rowe –
Lana Grant –
Scottish Autism Women and Girls Programme:
Books and articles:
The Girl with the Curly Hair
by Alis Rowe
Women and Girls with ASD
by Sarah Hendrickx
Aspergirls – “Empowering Females with Asperger Syndrome”
by Rudy Simone
M is for Autism
by The students of Limpsfield Grange
M in the Middle
by The Students of Limpsfield Grange
‘Spectrum girls survival guide’
by Siena Castellon
Article by the BBC regarding women who are on the Autism Spectrum:-
Videos and podcasts:
Sarah Hendrickx Women and Girls Youtube:
The Girls from Limpsfield Grange – Limpsfield Grange is a mainly autistic state girl’s school and have produced a short clip of their students talking about being autistic.
Rosie King TED Talk – Hugely inspiring talk by Rosie King, a young autistic woman about how being autistic has been such a positive for her.