Axia ASD

Autism Spectrum Disorder, ADHD and Dyspraxia

10,000 autistic people to take part in the UK’s largest study of autism

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PLEASE NOTE:
Axia is not affiliated in any way with this research project, and we are posting this article purely for informational purposes.
If you are thinking about participating in this research, please ensure you read the information sheet and consent form very carefully.
If you struggle with reading ask someone you trust to read it to you.

An ambitious new research project, Spectrum 10K, launches today and will recruit 10,000 autistic individuals, as well as their relatives, living in the UK.

Spectrum 10K is led by researchers at the world-leading Autism Research Centre (ARC), the University of Cambridge, together with the Wellcome Sanger Institute and University of California Los Angeles (UCLA) and will study how biological and environmental factors impact on the wellbeing of autistic individuals.

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2 responses to “10,000 autistic people to take part in the UK’s largest study of autism”

  1. Helen Marshall Avatar
    Helen Marshall

    All day, the most important (to my mind) autistic voices on social media have posited some very real, serious concerns about this project, specifically relating to the transparency of the usage of autistic DNA data, both now and in the future, and questions about how this research will actually benefit the lives of autistic folk. The fact that the DNA data will be held forever, shared with future organisations, with absolutely no guarantee that such organisations won’t use the data for future screening of autism, and their very murky disclaimer on eugenics, not to mention having access to everyone’s personal medical records is very concerning. A serious lack of transparency.

    Reply
  2. Linda Buchan Avatar
    Linda Buchan

    If you are thinking about participating in this research please ensure you read the information sheet and consent form very carefully
    If you struggle with reading ask someone you trust to read it to you

    Reply

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